I
know many of you are wondering about my little vacation to Club Med,
or the Palo Alto VA Hospital as it's more commonly known, and
thankfully I have some news to tell you. The final diagnosis was in
fact GVHD (Graft Vs. Host Disease). This is where the new immune
system from the donor attacks me, the host. (How RUDE, right?) We're
not really sure HOW it started or why BUT, the doctors all agree that
it was a good thing to happen and they had been waiting for it. They
also told me that it happened at an opportune time in my recovery
post transplant. I am currently weaning off of a round of treatment
with Prednisone, that dreaded steroid. I'll also be taking the
immune-suppresant that I was on up until last fall for another month
or so. All in all it could have been much, much worse. Thankfully I
have perhaps THE best caregiver ever known to mankind in Sarah and
together we caught it in time and made an appointment to see the
doctor.
Now
to tie in to the last post... Depression. Here's something very
interesting I learned while I was in the hospital. First, I KNEW I
was dealing with depression before I went in. Since the first of the
year I have been dealing with colds, the flu and beating myself up
trying to decide what I was going to do for a living and my
mental/emotional state steadily declined. I sat in my chair and
watched TV for hours on end and just felt generally sorry for myself
when I felt anything at all. I don't have a lot of friends out here
to spend time with and talk to about “stuff”. Just Sarah and the
kids day in and day out. Don't think that I don't love them, I most
certainly do, but being under the same roof day after day gets old
after a while. I needed OUT! Then when I went to the hospital for
four days I was exposed to other people and my mood dramatically
improved. Just getting out of the house and seeing other people made
a world of difference. Sure, everyone will tell you that when you are
feeling depressed you should call them and talk to them and believe
me that's great and the right thing for them to say BUT, it's not so
easily done when you are depressed. See, that's the very nature of
the beast when you're dealing with depression. I'm sure there are
differences with each individual but by and large when I talk to
someone about depression and they open up that is a common factor.
It's easy to see things from the outside looking in, but the view
from the trenches is much, much different. I have made efforts to
talk to people, to socialize with others outside the family and it's
paying off but it often takes going through it to see it for what it
is.
Just
yesterday I came across a link to a great blog post by someone else
who deals with depression. 21 tips on keeping your shit together
during depression. Here's the link:
21 tips for dealing with depression
Even
if you don't suffer from depression it's a great read and I highly
recommend you read it. (for those that I email this too I'll copy the
text into the email) I also came across a link to some advice for
talking to people who are dealing with some serious medical or health
issues as well as those who are caregivers or loved ones of said
person. It also is a great read and can be found here:
What to say and to whom in a medical crisis.
Such
great and timely information! I strongly encourage everyone to read
these articles, it could change the way you interact with others.
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